Courageous Parents Network https://validator.w3.org/feed/docs/rss2.html Annual Report 2025 Parent Champion Cathy Burt, parent of Tikvah Home Please Presume Competency Growing Around Grief A Place to Be With this one exact statement, I began to question what being a good parent was truly about. When You and Your Child’s Clinicians Have Different Ideas or Styles: How To Find a Way Forward Extended Family and Friends Donors A Lifetime of Moments: Building Memories and Living your Child’s Legacy Together Staff and Board Members You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness The Fleeting Nature of Good Days Transplant for Severe Aplastic Anemia Advocating for CJ Always (HLHS/Kabuki Syndrome) Things I Wish Providers Had Told Me: 7 Lessons Learned Raising my Differently-abled Son Living with GSD 1B is a Chronic Crisis Existence Parent Perspectives: Insights into Medical Decision-Making Learning our son had a rare genetic disease: It was a whirlwind. Grief in Bereavement: “Sitting through the state of loneliness.” 2025 Parent Champion Aisling Melton, parent of Éabha Falmouth Road Race Jordan and Julia “We were not ready for her actual diagnosis.” “To have the fortitude to push the medical team, from whom you are looking for an honest answer, was so frustrating.” “How we perceive her life can change with time. … It’s such a brief life but it continues in this way.” A mother on the agonizing decision to transition to Hospice Care: “It felt like nobody talks about it.” Wondering if your child is going to be the exception. “There are always those cases.” Infantile Epileptic Encephalopathy The Ring Theory of Support: Asking for Support and Offering It to Others La Teoría del Anillo de Apoyo: Pedir Apoyo y Ofrecerlo a Otros Parent Champion Program Help Us Understand the Needs of Grieving Siblings in School Blog Sibling Support Toolkit – Pediatric Palliative Care Coalition The 2025 Courageous Provider Award The Weight of the Family Outing The Burden Divide Supporting Siblings Through a Serious Medical Condition: What to Say Infographic Joanne Huff It was like this little secret society. Building a Path to Support: Navigating the Stages of Financial Planning Parent Champions 2025 Parent Champion Eddie Day, parent of Anna Children Have Spiritual Lives, Too. Exploring the Way Children Connect in Their World. Faith Under Fire Siblings Helping Children Cope with a Sibling’s Serious Illness “I really appreciated the child-life specialist who guided us [through end-of-life for our older son.]”